MGH Palliative Care

This is a research study that will lead to a sustainable, culturally tailored, and effective palliative care program for AI cancer patients in Western SD. In Phase 1, we will build upon formative work understanding palliative care needs, barriers, and opportunities in American Indians in this area, palliative care educational programs, and innovations in care delivery and patient engagement to create a culturally appropriate intervention for this population, focusing on two key components prioritized by stakeholders: (1) multidisciplinary provider education and (2) in-home support and care coordination through a palliative care focused community health worker program. In Phase 2, we will evaluate these components using an innovative quasi-experimental, factorial design, examining the combined and independent impact of the interventions on patient and caregiver outcomes, as well as provider knowledge and comfort. All phases of the project will be guided by a community advisory board composed of tribal health leaders and representative enrolled members from the three tribes. 

Gina Johnson, Program Manager 

Deanna Howe-Swan, Administrative Coordinator 

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Member Tribes

Cheyenne River Sioux Tribe

Cheyenne River Sioux Tribe

Flandreau Sioux

Flandreau Sioux

Lower Brule Sioux

Lower Brule Sioux

Crow Creek Sioux Tribe

Crow Creek Sioux Tribe

Oglala Sioux Tribe

Oglala Sioux Tribe

Sisseton Wahpeton Oyate

Sisseton Wahpeton Oyate

Yankton Sioux

Yankton Sioux

Rosebud Sioux Tribe

Rosebud Sioux Tribe

Meskwaki Nation

Meskwaki Nation

Turtle Mountain Band of Chippewa

Turtle Mountain Band of Chippewa

Trenton Indian Service Area

Trenton Indian Service Area

Santee sioux nation

Santee sioux nation

Standing Rock Sioux

Standing Rock Sioux

Mandan Hidatsa Arikara Nation

Mandan Hidatsa Arikara Nation

Ponca Tribe of Nebraska

Ponca Tribe of Nebraska

Winnebago Tribe of Nebraska

Winnebago Tribe of Nebraska

Spirit Lake Tribe

Spirit Lake Tribe

Omaha Nations

Omaha Nations

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